Skip to main content

The Uncomfortable Train

This year I have been forced to take a long voyage on the uncomfortable train.

This might sound like a bad thing but circumstances have arisen in my life this year that have forced me to reacquaint myself with the philosophies of Stoicism, Zen, and Taoism.

There have been many examples this year when I haven’t been able to get disability supports when I needed them. This has forced me to spend many hours in an uncomfortable condition.

To prevent me from bursting a blood vessel in frustration I had to go back to my favourite Stoics and remind myself things could always be worse.

I was also able to let go, thanks to the Taoist philosophy of Wu Wei which simply put is 'going with the flow'.

Like the Spartans my disability has taught me how to handle painful conditions and I needed to remind myself of these philosophies in order to rebuild my mental fortress and sit with uncomfortable.

Since 2016 the world has been in an uncomfortable state. This has recently been brought into sharp focus with the new movie 'Joker'. The 'Joker' movie is no joke and mental health is not a comic book villain. While I agree with the majority of critics and believe Joaquin Phoenix deserves the Best Actor Oscar, I strongly disagree with the fact that this movie supposedly signals the end of the social justice warrior. In my opinion, it is proof that we need more social justice warriors and so called woke critics.

It is true it is an uncomfortable movie but as I have learned this year life can be uncomfortable. So let’s try not to derail society and let’s stay on board the uncomfortable train.



Uncomfortable Train

Life is a high speed uncomfortable train.
If you don’t know how to apply the brakes it can send you insane.
We must be aware of each level crossing
And know who it is we are bossing.
We must take care not to get our signals crossed
Or our society is lost.

I have spent many a day on the uncomfortable train
With my only companion indescribable pain. 
Sometimes I feel like I’m in a car without a conductor
Because when I call for help from those who are supposed to care there is no one there. 

Sometimes I wish I could walk or fly a plane. 
Anything to get off this uncomfortable train. 

Comments

Popular posts from this blog

More Than Politics

 Every election our vote is about more than politics; it says I am part of this nation and my voice will be heard.  This election is about Team Australia. Which leader has a plan to build Australia's future and who wants to divide us? This election is about more than politics; it is about stable leadership. It is about aiming high, looking forward, and thinking big.  My life has been about disability rights. I am living proof that disability rights is more than politics and this election people with disabilities' votes matter.  If I was American I would die. Medicare is the envy of the world. No less than two American presidents have tried to bring in an Australian Medicare style system. Universal healthcare is a human right.  All leaders have been saying that we live in uncertain times and as a result, thinking about acting in Australia's defence becomes about more than politics. We need to make Australia impenetrable to anyone that wishes to do us harm. We nee...

Together Project

This blog post is the third in the series inspired by my reflections on the abuse and neglect suffered by people with disabilities. The Together Project is an art collaboration designed to create a safe place for people to discuss their experiences. For me watching people's creations has made me reflect on my own life experiences. I know statistically between 85 to 90 % of people with disabilities may experience some form of abuse in their lifetime. Until recently I would have said that I do not fit into that category but I am speaking up in this blog to demonstrate that abuse can be severe or subtle. Please read my poem 'Lock Box' to discover my true experience. For anyone that is interested in getting involved the exhibition will have a space at the 'Having A Say' Conference 2019 because together we can find a way. Lock Box A moment in fear all I hear is the ticking of the clocks.  I have an unhealthy obsession with security; I hide everything...

Circle of Life or Circle of Tech

 I have written extensively about how assistive technology helps me be independent. In blog posts such as More Than a Test Drive and Tony Stark's House (an Assistive Technology Dream) . My disability has turned the circle of life into a circle of tech.  Every few years I have to go through the assistive technology merry go round because all of my equipment seems to break down at the same time.  I am in the process of applying for a new hoist and sling, shower commode chair, bed, front door opener, and new abductor cushion.  I also am aware in the not too distant future I will have to attempt to try and get a new wheelchair. Every time I have to apply for a new piece of equipment my therapists and I have to make the case as to why that particular piece of equipment is 'reasonable and necessary'.  The frustrating thing about this is, even though it might be clear that I need a piece of equipment, one or two words in the funding form can make a difference on wheth...