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Showing posts from February, 2023

Active Support

 People that know me, know I am a poet, public speaker, political activist, professional actor, and most importantly, a husband.  What most people don’t know is that none of that would be possible for me without the active support of my family, and my disability support workers.  Many people including some health professionals put too much focus on my Cerebral Palsy.  My first rule is to treat each person as an individual, just because I have Cerebral Palsy doesn’t mean I am the same as everyone else with Cerebral Palsy.  My second rule is take a holistic view of my life, yes, CP is a part of me but I have a family life, a social life, a working life, a spiritual life, and a sexual life.  Of course it is important for support staff to be aware of the physical and social attitude barriers my disability creates.  Lack of access to my community is the number one physical barrier I have faced in my forty years, because of this I have to plan my life like a military operation.  Negative soc