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Reflections of a disability
I look in the mirror who do I see because
it certainly isn’t me;
Every imperfection magnified like it’s under a
microscope;
I
don’t know how much longer I can cope;
They say the eyes are the windows to the
soul;
I
look through my eyes into my deep dark soul and I feel like I’m losing control;
When I was young and my life had just begun
I dreamed a thousand dreams.
I should have listened to my mum and dads
advice,
because after all they have been here before.
They always told me take it one step at a
time and everything would be just fine.
I often wonder why I am here that there is
no reason is my biggest fear;
all
I want in life is my dreams to come true;
if
they don’t I don’t know what the hell I’m going to do.
I look in the mirror and what do I see, my
disability staring back at me.
By Chris Van Ingen 28. 08.2002
Fragments in time
Each moment in time
is just a fragment,
we never know how
many we are going to get as time goes by fast,
soon the future becomes the past.
As time moves on it
gets a little strange,
but some things
never change.
Somewhere along the
line we all experience pain,
but that is the
rules of the game.
So we learn to love,
laugh and cry and at the end of the day we are left
asking why?
I watch the old
woman sitting in her chair and I wonder how time led her
there.
The wrinkles on her
face are cracks in her facade,
from the moments in
time that have left her scarred.
We are born kicking
and screaming,
but we waste most of
our time sitting and dreaming.
.
When we are young we
believe we have plenty of time up our sleeves,
but before we know
it, it is time to leave.
Puzzle of life
Life is a puzzle this is true;
Let me tell you something, I haven’t got a
clue.
When we are young we look at the world and
say this could be fun.
Here on earth we walk a fine line between
heaven and hell;
Which is which it is hard to tell?
Every day men go to war, let me ask you
what the hell for?
Lust, money, greed and power;
so
many dirty words I think I’d better take a shower.
There are so many bad things in the world,
That people have forgotten to focus on the
good,
So I think it is about time someone should.
Love and hope without this none of us would
cope;
Remind yourself of this every day in any
way you can;
Because if you don’t it could be the end of
man.
Life is a puzzle this is true. How it will
end I haven’t got a clue?
By Chris Van Ingen
911
The anniversary of September 11th
is here;
It’s hard to believe it has already been a
year,
And yet the world still lives in fear.
It was the most horrible thing that any of
us have ever seen.
What I’d seen on my TV screen didn’t seem
real it looked like something straight out of a movie scene.
A collage of faces I watched them all cry;
I remember asking myself why.
The whole event shook us all down to our
soul;
Because we realised we weren’t the ones in
control.
The twin towers they did fall but humanity
did tower in the planet’s darkest hour.
We should thank god that we are alive each
day;
Because we don’t know how long it’s going
to be that way.
The anniversary of September 11th
is here it’s hard to believe it has been one year.
By Chris Van Ingen
11.9.02
Imaginary Friend
Goodbye my imaginary friend, my chest
tightens and my throat swells as I realize our special friendship must come to
an end.
I have to move forward and become a man I
think that is god's plan;
As I take my first steps out of the
protective bubble that is my mother’s womb;
The world is filled with doom and gloom.
I long for my happy childhood when I used
to see everything in black and white;
And I knew everything would be alright,
With you by my side along for the ride.
Now there is no turning back, that is
life’s brutal fact.
Every day I watch the news and I am presented
with conflicting views,
On one hand I see war and betrayal;
And on the other I see a humble women
becoming a princess;
Finally getting her fairytale.
Somehow in this schizophrenic world my
spastic body and I have to avoid strife and try and build a so-called normal
life.
I have to find my true love before my heart
turns hard and black,
Before I’m too blind to see that she is
standing right in front of me.
One day I will turn old and grey,
And I will regress back to my childhood
happiness.
You will be there to hold my hand until the
end,
My dear imaginary friend.
Secret Love
You are my secret love, my secret angel.
Sent from god’s kingdom above.
Every part of me feels pain,
Because I can’t tell you how I really feel;
That is such a cruel deal.
My secret love you are every thing I prayed
I would find one day;
Why does it have to be this way?
You and I can never be,
So my heart will never be free.
Please my love send me an anti love potion;
So I can end my secret devotion.
My secret love, my secret angel;
Sent to me from god’s kingdom above.
True Love
True love is no ordinary love; it’s a
special kind;
The kind that people search all over the
world trying to find.
True love is when you see that special
someone,
Your head is filled with romantic words
that rhyme;
They're so easy to talk to you lose track
of time.
True love is when you think they are more
beautiful than all the stars in the sky;
But you don’t know why?
It is when you can’t tell them how you feel,
Because you’re scared it might not be real.
When your about to give up on true love and
fate;
Out of nowhere comes your soul mate.
True love is when someone makes you become
the better person you want to be;
Because without them your heart will never
be free.
True love is when you know you cannot be
with them because it wouldn’t be right,
But your heart won’t give up the fight.
The path to true love is never perfect,
It always goes up and down;
Otherwise we can’t appreciate the miracle
that we found.
Above all true love is fun,
Because it’s different for everyone.
Heartache
My heart aches, my heart breaks with every
beat it takes;
My heart begs her to stay, but this love
story cannot turn out that way.
Everyday I live in fear that my thoughts
will betray how much I want to be with her.
It’s as if she is surrounded by an
invisible force, just one smile from her throws my heart off-course.
I know that love exists because she is out
there, so can anybody tell me why in the game of love the rules are so unfair.
Whenever she is around I don’t know whether
I want to fly;
above the clouds in the sky or go to my room
and cry.
My heart aches, my heart breaks with every
beat it takes.
Faith.
I believe in god all mighty, my faith is what
keeps me safe.
I believe there is a reason god gave me a
disability;
I believe I am suppose to prove to the
world your dreams can come true;
at
the end of the day no matter how big the obstacles standing in your way.
I don’t know whether this theory is wrong
or right but it helps me sleep at night.
They say in this life “no pain no gain”
then some of us must be way ahead of the game.
I must confess I have wondered once or
twice whether my life is worth such a hefty price.
That’s why god gave me a family of angels;
my father, my mother, brother and grandparents too, have always been there to
help me through.
Sometimes I feel the burden I cause outweighs
my short term benefit, but I’m not going to give up yet, because I believe in
all mighty god and it’s my faith that keeps me safe.
My inspiration
Love is exciting and joyous;
Love is finding your one and only.
Love is dangerously debilitating;
Love is my inspiration.
Butterfly.
She is my shining light in the darkness.
Somehow she opens my heart which has been
closed,
leaving it naked and exposed.
She whispers softly in my ears,
the words I’ve been dying to hear for
years.
She makes me feel more like a man than any
other woman can.
So if she ever doubts what I feel for her
is true,
All she has to do; is put her hand over my
heart,
And feel it race every time I see her face.
I pray to god that she will be patient with
me,
because I’m not yet equipped for such
intimacy.
When I’m with her it’s like watching a
butterfly spread its wings,
It reminds me that the world is full of
beautiful things.
Love story.
This is a real life story of the beauty and
the beast,
This is the story of how my heart was
released.
Something so precious it would rival even
Romeo and Juliet,
My lady I shall never forget.
Under the stars we kiss,
I never knew dreams could feel like this.
We look into each other’s eyes as I hold
her hand,
As a symbol we understand.
I never knew someone could make you feel so
strong and yet so weak,
She is the happiness that I seek.
I would go through hell every day,
Just for a chance she would make me feel
this way.
To her my promises will be forever true,
For her there is nothing I wouldn’t do.
Reflections of a disability II
A man split in two presents a conflicting
view,
Which one should we consider to be true?.
His inner soul knows he could be anything
he wants to be,
If it wasn’t for his damn disability.
His one true love makes him feel like a
normal man,
She makes him dream of a life full of hope,
She makes him believe in gods plan.
He takes one look at her and wants her to
be his wife,
He takes one look at his mangled body and
asks,
If I love her, how can I make her part this
spastic life?
He tells himself no pain no gain,
If that is the case the he should be way
ahead of the game.
When a man, split in two, looks at himself
what does he see?
Reflections of a disability.
Reflections of a Disability III
Strange eyes stare at my nakedness;
Strange eyes stare at my body’s spastic
mess.
My mind switches into automatic pilot;
trying to forget.
My mind trained to go numb, trained to
escape;
The invasion that is to come.
Strange hands clean up the waste from my
wasted body.
I only hope that my mask is good enough so
that the strange eyes cannot see, how much I hate such indignity.
I wonder what the strange eyes see when
they look at me,
I wonder if they see the same things I see.
I wonder if the strange eyes see
reflections of a disability.
Tell me what to do.
Won’t somebody tell me what to do?
I’m so confused, my brain is bruised,
I haven’t a clue what I should do.
Should I be an actor? Musician?
Or a goddamn magician?
A writer? a fighter? or a bull rider?
A teacher? a preacher?
This thing called life is a strange
creature.
I make so many plans each and every year,
But somehow I just get stuck in first gear.
My life is going nowhere fast,
I don’t know how much longer I can last.
Sometimes I feel that I got the wrong deal,
That my life isn’t real.
I pray to god each and every night,
Just to find out what he’s got to say,
But I get no answer anyway.
Won’t somebody please tell me what to do?
I’m so confused my brain is bruised,
I haven’t got a clue what I should do.
Won’t somebody please tell me now?
The who, what, why, when and how.
Please hurry up because I don’t have much
time,
I’m running out of words to put in this
rhyme.
So by know you’ve probably got the
impression,
I’m suffering from some kind of depression.
Let me tell you that is not the case,
There are just some things I my life I’ve
had to face,
Don’t worry because it won’t be long
And I will be back on my feet again feeling
strong.
Won’t somebody please tell me what to do?
I’m so confused my brain is bruised,
I haven’t got a clue what I should do.
Reflections of a Disability IV
I live my life in limbo. Where do I belong?
Does anybody know?
The real world is where my heart and mind
belong,
But my body just feels all wrong.
In the spastic world my body feels at home,
But my soul feels empty and alone.
In the real world I try to live with the
normal crowd,
But the stick figures painted on the
special car parks show me I’m not allowed.
In the spastic world my body is the same,
But I don’t play by the rules of their
game.
I feel like I’m a better man,
Because I can accomplish more than they
can.
This last fact is not true,
It’s just a lie I tell myself to help me
get through.
I cannot escape this life in limbo,
I have nowhere to go.
I will never be free,
Because I’ll always be surrounded by
reflections of a disability.
Overwhelming
What can we do to help the millions of
African orphans whose parents have died of AIDS?
How can we stand by and watch the virus run
rampant while the hope in a boy’s eyes fades?
How can we overcome the helplessness?
How can we help the world clean up this
mess?
Why does a God who loves us, give us the
precious gift of the Earth wrapped in a bow?
And then take so many lives away with one
single blow.
How do we find the strength to deal with
such a tragic thing?
When the grief we feel is so overwhelming.
So much human loss engulfed in one single
wave,
It amazes me how people can be so brave.
It’s good to see all the world’s nations
come together as one,
I just hope no one gives up until the job
is done.
It will probably take many, many years
Along with hundreds and thousands of tears.
It is sad that it takes so much pain for us
to come together,
I only hope we’ll learn from this and the
world will stay united forever.
Reflections of a Disability V
How do a man’s eyes look forward,
When his heart tells him he’s nothing but a
fraud?
How does a man figure out who he is?
When the spirit of a ferocious tiger
And the voice of failure live side by side.
How does a man sleep at night,
When the fear of losing the happiness he
has
Ties him up in knots on the inside?
How does a man deal with the thought,
That the woman he loves more than anything
in the world,
Might one day see reflections of a
disability,
Instead of the man he wants to be?
Making Love
Making love is not just about sex,
It’s about something much more beautiful
and complex.
Making love occurs when two lover’s bodies
and minds,
Are completely intertwined.
Making love is more than just physical,
Some people describe it as something very
spiritual.
Making love is when being inside your
lover,
Is not about any kind of physical release,
It is about the ultimate expression of
intimacy and peace.
Making love is when you feel your lover’s
touch,
Skin on skin,
And you know there couldn’t possibly be a
more beautiful thing.
If there’s ever a time you need proof of a
God above,
Take the one you love,
Lie together and make love.
Prayer of the Disabled
The prayer of the disabled
is that the rest of humanity,
Will learn to see
More than just a disability.
We hope that all those people
Who offer prayers,
That we will walk again
And God will take away our pain.
Will learn that for as long as God wants
it,
This is the way things will stay.
We pray that there is a reason,
To keep up the fight,
Season after season.
We pray God will make us strong,
Just so we can keep going on.
We pray that when Jesus does return,
The reason for everything we shall learn.
The prayer of the disabled
is that the rest of humanity,
Will learn to see
More than just a disability.
Pain
of Christ
At Easter we are reminded
Of the Passion of the Christ,
And how much he sacrificed.
Jesus suffered so much pain and ridicule,
But in the end he committed the
Ultimate act of selflessness.
With my disability
I have also experienced pain,
Which makes me commit
The ultimate act of selfishness.
How can one man be so strong?
And still do no wrong?
Each time I hear Jesus’ story
I weep and promise to carry on.
And yet in this modern world
How easy we forget.
Jesus’ faith made him different,
Just like my disability
Makes me different too.
But it’s God’s love
That sees us both through.
Thankyou Jesus
For what you give,
You are the reason
I can live.
Road of Life
Travelling down the road of life;
At the end will be the woman,
They will call my wife.
This road travels through the forest of
life,
On one side the forest is lush and green
And on the other side is a jungle of
technology.
Gone are the days of simplicity,
When the only thing that mattered in life
Was driving in the car with the family.
The road of life takes many bends,
We will all have many changes in course
Before it ends.
A career, a home and children too.
These are just some of the turns
Our life will travel through.
We all need a compass when travelling
The road of life
For me this is the woman they will call
My wife.
Insanity
Hello I’m insanity I have many different
faces I can be lurking in so many different places.
Claustrophobic, agoraphobic, homophobic,
all these things are the seeds that make you sick, just watch and see soon
people will be questioning your sanity.
Homicidal maniac planning a sickening
attack, that’s insanity that’s it Jack.
Watch out world here comes crazy; things
are starting to get a little hazy.
Delusions of bouncing cats and a deranged
clown, how about some nice medicine to calm you down?
Many things can make you insane especially
indescribable pain, losing the love of your life or the killing rage of a
battered wife.
Some people feel invincible like there the
best, then the next second there morbidly depressed.
Sometimes when I am in your head suicide
seems like such a sweet ride.
When things in the world seem to be getting
out of control, just look around and you will see all different types of
insanity.
Long Wait
I sit and wait once more,
Waiting for life like I have so many times
before.
My anticipation grows with each passing
car,
Is anyone coming to get me?
I wonder where the hell they are.
I see something off in the distance,
I try to give chase,
But then I remember my place.
I turn my attention to my pathetic limbs,
They remind me of the haunting branches
Of a tree in a horror movie
I sit trapped in this electric monster.
There’s nothing left to do except wait for
her,
The torturous long wait
For this miserable thing they call fate.
Disappear
How do you face the fear that everything
you wanted could disappear?
What do you do when you know no matter how
hard you pray,
everyone you love God can take them away.
How do you stop yourself from becoming
stressed,
when you realize you’ve been truly blessed.
You can’t help but wonder is it all a dream
because it can’t possibly be as good as it may seem.
A family that helps you be every thing you
can be
Despite a fucked up disability.
A women that shows you what life and love
are all about,
She lets you know that you didn’t have it
all figured out.
After all the pain what do you do when at
last
All your dreams come so fast.
How do you deal with the feeling late at
night when you know it isn’t right?...
How do you deal with feeling so guilty that
all the dreams have can come true for someone like me.
What do you do when you look back and see
that you live in fear that every thing you have could disappear?
Life is not a rock
Life is not a rock around our necks,
Life is not a burden we have to carry.
Life is not something to be endured,
Life is something to be lived.
Life is like making love
We can not enjoy it until we let ourselves
go.
We should rejoice in our joy and revel in
our pain,
these are the things that teach us what is
precious.
Our worries have plunged our world into
darkness;
We have forgotten how to breathe every
breath like it’s the sweetest chocolate
Or saver those moments with the ones we
love like they are an exotic cuisine.
Life if something we don’t know when it
will end
So we should live our life with no regrets,
No unanswered questions,
Leave no dream unfulfilled,
Life is to be loved,
Life is not a rock around our necks.
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