Skip to main content

TikTok Turning Back the Clock on Disability Integrity

The past few months there have been some horrifying incidents that affect the entire disability community.

The tragic and unnecessary death of Ann-Marie Smith is a major indictment on disability care. Her situation should not occur in 2020 and the fact that the ironically named Integrity Care has only received a fine is just a disgrace. No matter how big the fine is it does not equal the price of Ann-Marie's life.

Just as the disability community was coming to terms with one tragic death, the appalling neglect of little Willow Dunn came to light. Where were the agencies that were supposed to be protecting her?

My anger reached boiling point when I read the story of the two Brisbane boys with Autism who were found locked in their house in filthy conditions despite neighbours reporting the neglect of the twins to authorities no action was taken.

As a further demonstration of current attitudes towards people with disabilities, I was forced to add my voice to the outrage over the TikTok Autism Challenge. The Autism Challenge is supposed to be "funny" but dancing to 'Let's Get Retarded' does not demonstrate the respect that people with disabilities deserve.

Thousands of disability advocates, including myself, have spent our entire adult lives advocating for the rights of people with disabilities.

In 2020 our vision should be moving forward. It shouldn't be as if we are turning back the clock.

If you see or experience abuse, it is okay to speak up. It is okay to complain.



Under the Willow Tree

Ann-Marie Smith is walking in God's forest
When she comes across a baby Willow.
Where are those who are supposed to help her grow?
She pours out her love like water and takes her as her heavenly daughter.

The two sit and watch safely under God's canopy
And wonder what happened to care and integrity.
They watch the insane dance and whisper to each other
About the things they could have taught us if we had given them the chance.

Why do we have to put up with such unauthorised restraint?
Will people only take notice when disabled blood is splashed around like paint?
Let us gather under the Willow Tree, 
And protect the dignity of those with a disability.



© Chris Van Ingen - 5 June 2020

Comments

Popular posts from this blog

Defend Our NDIS

 Defend our NDIS; people have had enough of cuts and changes to the NDIS. The Every Australian Counts campaign has organised a national day of action and events across Australia to take place on 28th of April.  I have been involved in the NDIS from the initial trial phase through to today. People may remember that I was involved in an advertising campaign spruiking the benefits to come once the scheme was up and running.  ‘You’re in charge! Yes we are, aren’t we!’ For awhile this was the truth for participants like myself. I have been very lucky and received 90 percent of what I need from NDIS.  The question is would I have received the same benefits if I was not a skilled disability advocate?  People with disabilities want the original version of the scheme that was promised without having to fight for a reasonable request. It would be a more efficient scheme if the government put the millions of dollars in legal fees into service delivery instead.  Accord...

Throw Out The Label Maker

Through a lot of self-refection over the last few weeks I’ve come to believe it’s time to throw out the label maker before all the labels cover up our humanity. I use to think labels were cool, signs of what we’re meant to be, until those words turned to weapons pointed at me. Spastic, special disabled even retard these are the labels that at one time or another made my life hell. Cousin, aunty uncle, mother, father; where I come in the family tree the energy I share with the world  is unique and impossible for a label to  define. Chink , abo, wog and rag head; I don’t know why we can’t just see each other as people? Gorgeous, sexy, ugly, disgusting, fat and skinny but I want to know why I’ve never seen a picture of a guy or girl in a wheelchair with the caption Heartthrob. We need to recognise all beauty. Success, failure, dumb or genius, normal to eccentric these days all labels do is turn society into us and them. Christian, Muslim, Buddhist are al...

One in Five

Today on the day of International Day of People with Disabilities I had a wake up call as to why a day like today is important. At the shop today, I was confronted by a man ranting and raving. My initial reaction was to call the police, but my disability training kicked in. I went over and asked his mum if he had autism. So, yes, we do need days like this. However, there is a flip side in my brain as well. I want to be seen as just a normal person. That argument that has been going on in my head all day inspired the following poetic thought. ONE IN FIVE One in five of the population have a disability, but I am not a fraction, I am a whole. The International Day of Disabilities is great, but cannot give an insight to my soul. Can a liberal society live with disability, is a question that the ignorant raise. We don’t need special days. Instead of focusing on disability, we should have an international day of ability. I put on a royal robe of red in an attempt to transf...